ABCA4, Blind, Cone-Rod Dystrophy, Disability, eye disease, genetic, Retinitis Pigmentosa, Sight, Stargardt's

Accessible Parking

I always thought that because I do not drive and do not use a wheelchair, I did not need an accessible parking permit. My husband had a totally different opinion. He saw the permit as solving a safety concern. We discussed this at length, multiple times. It was not until I was pregnant with our… Continue reading Accessible Parking

ABCA4, Blind, Cone-Rod Dystrophy, Disability, eye disease, genetic, Retinitis Pigmentosa, Sight, Stargardt's, vision

New Update: Part 1

Hello, I know it has been a while since I have updated all of you. Between COVID-19, new professional opportunities, and to be perfectly honest, my processing of all the new and different information I have been given related to my vision, I have been overwhelmed.  I am not sure how many parts I will… Continue reading New Update: Part 1

Uncategorized

Update From Trip to Gainesville

Hey everyone! Kids have been sick, work has been busy, and my mind has been disorganized.  I wanted to get this out sooner, but life.  Alright, so here we go: Nick and I took the four hour journey North to Gainesville, FL (not exactly the dream couples getaway, but positive attitude!).  The doctor was still… Continue reading Update From Trip to Gainesville